Mission Statement

Written by Loreen Willenberg
Sunday, 22 June 2008 13:29
MISSION STATEMENT The “Zephyr Foundation” is developed to establish a non-profit organization representing all individuals identified as “long-term non-progressor’s” (LTNP’s), Viremic Controllers, and Elite Controllers of HIV who are participating in clinical research studies throughout the international community. OBJECTIVES: Develop a potential list of donors inclusive of individuals, corporations, and charitable organizations for the Foundation. Assist in recruitment efforts by locating and linking eligible participants to the LTNP/HIV Controller research studies for the advancement of those studies. Provide financial resources in support of travel, lodging, meals and incidental expenses associated with participation in LTNP/HIV Controller clinical research studies. Serve as a social network for all participants desiring communication within the LTNP/HIV Controller community. Disseminate pertinent information to all participants, i.e. specific reimbursement policies per research entity, legal rights, honorariums, etc. Act as a ‘liaison’ between the participant and the research entities. Educate and inform eligible and enrolled candidates about the clinical research study participation process. Assist in ‘stream-lining’ all associated logistical issues pertaining to travel, lodging and transportation to destined research facilities. Present a ‘unified’ voice of the participants to institutions conducting LTNP/HIV Controller research studies.
Last Updated ( Thursday, 26 February 2009 14:48 )